Merry Christmas to everyone from Evie! Evie has been busy meeting relatives and waving to the masses. She literally waves to everyone. She got so many presents, that Grandma has to bring some back for us when she comes back to Boston. Her favorite part of the presents was the wrapping paper! This is our second Christmas with Evie, but in some ways it feels like our first, because we were in the hospital last Christmas with a one week old baby! What a difference a year makes! We've been working on extra tummy time for Evie during the holidays. Her upper body strength is great, but her legs don't want to move along with her arms to crawl! The best incentive to get her to move is her feeding tube syringe. This is good news and bad news. Good because we have something she really wants, and bad when she tries to grab the syringe while we are feeding her by g-tube. We have spilled quite a bit of water and formula this way! If you are the praying kind, ple
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).