If you're reading this, I hope you don't have to go through heart surgery with your child. But even if you don't, I hope that this gives you an idea of how life is in the hospital. Before Evie's heart surgery, I was desperate for any information I could use to feel prepared to live in the hospital for a couple weeks. Fellow parents on local Facebook groups were so helpful in speaking from their own experiences. But I couldn't find anything online where someone wrote it all out. So in the hopes that this helps someone, here goes. WHAT TO PACK (besides your clothes) Toiletry bag that hangs (no counter space in the bathrooms)--don't forget shampoo and conditioner and soap because none of that is provided. Photos to put on the wall Favorite stuffed animals for a touch of home and for nurses to use to prop up your child's arm or leg Foam egg crate mattress Sleep mask Ear plugs Pillow for yourself with colored pillowcase so your pillowcase
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).