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Feisty Evie and the Drugs

Hi from the Cardiac ICU! Evie is doing ok--we are waiting on some of her puffiness to go down (i.e. Letting her pee it out).  
Her blood pressure is a bit elevated too.

The funny thing is, Evie won't let the sedative meds hold her down. She has been moving around quite a bit. The nurses are calling her "feisty" and "rowdy." It's good to be feisty, but not when you might pull out the tubes that are helping you!  She opens her eyes sometimes to look at me.  She's not in pain though. I keep telling her I'm sorry she has a breathing tube. The nurses assure me she is ok. But they don't want her to be so awake that she's moving around. 
 They propped her up with Pink Dog and Ultimate Warrior Bear, so she is now nice and snuggly. (Shoutout to Doug for coming to tell me that I am allowed to take pictures!)

Now the team is discussing how to keep her sedated safely. This baby burns through the drugs like they're nothing! That's my strong girl!  She looks really good. If she didn't have all those wires, she looks like she could just get up and look around. I also swear she got bigger overnight.

At lunch today, I met another mom and dad with a  9 month old girl here in the cardiac ICU. Little Ellie has Down Syndrome, just had heart surgery and has a g tube too!  It was nice to meet a family who are walking a similar journey. There is a certain automatic kinship when you meet someone who understands any of those things, not to mention all 3 of those things!  

It's looking like tomorrow she will be woken up and they will remove the breathing tube. Tonight we get to have one more night of good sleep at home and then we will be on active duty watching over her as she gets transferred to the step down unit.  We would really like to see her blood pressure go down on its own. 

Sleep well, little Evie! 


  1. Awwww she looks so little in that bed!! Praying with u guys!

  2. You guys are amazing. Evie is too. Praying God's healing hands on her as she recovers. <3

  3. I was praying every moment. May God bless Evie's normal blood pressure.

    1. Thank you very much, Jeniffer for your prayers!!!

  4. looking good! I am glad someone told you it was okay to take pictures! I didn't have a chance to!

    Hope you get back to the step down unit soon!!

  5. looking good! I am glad someone told you it was okay to take pictures! I didn't have a chance to!

    Hope you get back to the step down unit soon!!


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