Evie the Extraordinary and Her Mommy: The Journey As We Go

During the pandemic, Evie and Mommy have ventured into the art of making videos.  Once we became better at it, we started a Kids' Youtube channel, called Evie the Extraordinary !  My goal in these videos is to show our audience that Evie is more alike other kids than different. Sure, her expressive verbal skills are slower to develop, but her receptive skills are all very much in tune, and it's so fun to show everyone how smart she is!  I mean, the kid taught herself to read!  Evie's favorite movies we've made so far are the Ice Cream truck episode and the Juice making episode.  Today, we released a movie about alphabet foam tiles, because that's Evie's current favorite toy!  https://youtu.be/-axg_FGjwz4 We'd love it if you'd like our videos and click to subscribe!  When we reach a certain number of subscribers and watched hours, then we can be included in Kids Youtube.  Think about how many kids will be able to see how Down Syndrome is just somet...

This past weekend, Evie took her first plane ride and her first vacation!  Our friends Jerry and Rebecca were getting married in Vegas.  I was nervous about her first flight, and spent a few days just making sure we had everything we needed. Just packing for a baby is hard enough.  Make that an aspirating baby on a g-tube who is starting solids, and it gets even more interesting.  But I am thankful that it's not an aspirating baby on a g-tube on oxygen!! Evie snoozed before take-off! We made it to the airport just in time to get through security, grab something for dinner for the trip, and pre-board.   Evie got her first pair of airplane wings, but was too sleepy to enjoy them.  Evie became known as "the good baby" on the plane, because there was another baby who was screaming the whole flight.  Poor baby and her poor mommy.   One fear was that Evie had not pooped in 2 days, and she usually poops at least once a day...