My dearest girl, I waited and prayed for a baby for so long, and here you are. I've had a whole year with you! You aren't even really a baby anymore. You are a squirmy, curious toddler with an infectious laugh and a smile that could light up the room. You are also a fighter. You lived through 6 weeks in the NICU and charmed everyone around you, and you made open heart surgery look like a piece of cake. The smiles that you gave after heart surgery made me realize that 1) you were not feeling well enough to smile very much before, and 2) that you have the cutest dimples. The experience confirmed to me how much God has been providing for us on this journey of being your parents . You (mostly) patiently wait for us to change your feeding tube dressing or let some gas out of your tummy. You put up with Mommy's playing dress up with you and telling you to pose for the camera. You even give a cheeze-y smile for me when I ask. You charm everyone at your many ...
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).