Evie the Extraordinary and Her Mommy: The Journey As We Go

Last night, for the first time since she was born, Evie didn't get a formula feed overnight, and she didn't even get water overnight (for hydration).  She slept like a typical child in her crib, with no hookups.  I didn't have to hook up the 24" right-angle Y-port extension tube into her tummy and through a hole in her Zipadee Zip to the G-tube pump.  My husband didn't have to prep the 500 ml feeding bag and wait until she was asleep to hook up the feeding tube.   He didn't have to wake up at 5 am to turn off the g-tube pump when the alarm said the feed was done.  We didn't have to wake up because the flow was interrupted by her tossing and turning and the alarm didn't have to go off.  SHE didn't have to wake up soaking wet because there was a leak, or because the tube somehow became disconnected overnight. With that, I want to post a tribute to the IV pole.  It has faithfully stayed by her bed, standing guard and holding her food for 2 and a ...

Not sure if there is a book called Traveling With A Baby For Dummies, but I felt like I needed it. As someone who is a planner, I of course had to research how to take a baby with a G-tube and multiple medications on the plane to Vegas. The best summaries of what to bring were on the Feeding Tube Association's site , and on the blog Feeding Ray a. The logistics of how to get Evie through the TSA process and how to feed her on the plane, in a hotel, and in a hot environment were not situations in which I wanted to "wing it."   Here goes. GETTING THROUGH SECURITY All our medications were put in a small cooler the size of a thick phone book. The ice packs were frozen solid, because I had read that if your ice packs are slightly liquified in any way, the TSA will confiscate them.  Sure enough, I heard TSA agents both times mumble "frozen" to themselves as they confirmed that the ice packs were nice and frozen. Printed this card: TSA Card This card ale...

Update:   Hi all, I am doing my first giveaway! If you read my blog post the other day on the miraculous Zipadee Zip, then you know how this thing has changed our lives as parents.  The makers of Zipadee Zip liked my review so much, that they offered to help me do a giveaway. All you have to do is 1) "Like" their Zipadee Zip Facebook page and 2) leave a comment about why you could use a free Zipadee Zip on this post! The contest begins Wednesday, May 27 at 12:00 AM and ends on Sunday, May 31 at 12:00 AM.  Good luck! a Rafflecopter giveaway  ------------------------------------------------------------ Original post: There was a point in time when I was just proud I could swaddle teeny tiny Evie with a hospital blanket. Then she came home and started busting out of the blankets, and woke herself up all the time. Her arms flailed and her legs kicked while she was sleeping, which of course woke her up. But then she got bigger and craftier, and I...