This post is dedicated to Evie's first boyfriend JJ, who lounged next to her on the carpet as they g-tubed peacefully together at the same time at the ripe age of 6 months. He has moved onto greener pastures and now tries to sit on every woman's lap possible. At the age of 3, he is a lady killer! We love you, JJ! <3 I wanted to share some of Evie's favorite blended foods. It's a tough balance when we have to fatten her up, but I have to make blends that taste good by mouth too. Whatever she doesn't eat orally is thrown in a blender with some formula and put into her tummy by g-tube. She eats 3 meals a day orally and gets supplemental formula/blends to help her with her growth rate. We just had our most successful Nutrition visit yet since trying to lessen the amount of Pediasure! Evie doubled her growth rate from 5 grams a day to 10 grams a day! I wanted to take a picture. Hearing "well done" at this visit is enough to ma...
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).