Evie the Extraordinary and Her Mommy: The Journey As We Go

Hi everyone! My mommy is too busy to blog, so I have decided to blog for myself today. I had my last day of preschool last week, and I am enjoying vacation.  I wanted to tell you about my thoughts on preschool since starting in January. It's awesome. When I arrive, I meet with Miss Amanda, and she helps me walk in to the classroom. As soon as I walk in, people say hi to me.  My friends C and F are especially good at saying hi to me, and make me feel really special.  In fact, they have been greeting me at the car, ready to hold my backpack and hold the door open for me.   After I go inside, I put my name on the attendance board and then join in free play.   On Mondays, I do therapy with my speech, PT, and OT therapy ladies, and they usually come into the classroom and hang out with me.  Sometimes we go and walk down the hallway with my walker. I'm getting really good at that. When I walk down the hallway, the older kids know my name and say hi t...

Sometimes when I'm hooking up Evie's g-tube in the food court in the mall, I look around to see if anyone is watching.  I still brace myself when someone shows interest in what we're doing.  I have no idea what they will say or conclude, but I do my best to explain why she has a feeding tube in a practical way. The Feeding Tube Association just released a brochure that tells our friends and family how to be helpful to us.  I love their list of what is helpful and what is not so much, that I had to post it.  Here is the full brochure: http:// www.feedingtubeawareness.or g/ Family_and_Friend_Guide_to_ Tube_Feeding.pdf Evie's mommy's commentary in italics below ( my original g-tube entry is here ): What is Helpful. Listening. Parents who are just starting on this process have a lot on their mind. They have concerns and they may not know all the answers yet. When Evie just got her g-tube, we were having trouble figuring things out post-NICU stay, and answer...