Last week, we had 2 big appointments that had to do with Evie's feeding. One was with the feeding specialist for the first time since she was 2 1/2 months old. (So much has changed since then!) The other was with the Enteral Tube GI and Nutrition Clinics. Evie now weighs 16 lbs! We have worked hard for those thunder thighs! Our feeding goals for Evie include: 1) Drink more from her bottle so we don't need the G-tube 2) Eat more solids 3) Don't choke while drinking thinner liquids (i.e. we are still thickening what she drinks) When you go to the feeding team appointment, you're supposed to bring your child hungry. Evie didn't seem to mind that she hadn't eaten in four hours. Those are not my genes! She also decided to show the feeding specialist that she was not interested in her bottle. A head turn into my armpit was her message to us! Perhaps because 4 people were watching her while she ate. I wouldn't like eating either with 4 people watchi...
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).