Skip to main content

Evie and the Good, Terrible, No Good, Very Good Mother's Day

My first Mother's Day was both great and terrible at the same time.

For Mother's Day, I got horrible stomach cramps (not contagious) and Erick came down with a fever and sore throat.  My visions of wearing a pretty dress to church and having Evie wear a cute outfit as well were quickly dashed. No nice Mother's Day lunch either.  Erick couldn't even go near Evie for fear that she would get sick.  If she gets sick close to her surgery date, they won't do her heart surgery for obvious reasons.

So I hobbled around the house while doubled over, and made sure Evie got fed and stayed alive this weekend.  I don't think she had any idea how incapacitated her parents were. Ah, the life of a baby!  

Look! More hair!

May I now take the opportunity to salute single moms or moms who have husbands who don't lift a finger. I salute you over and over again, because I barely survived 2 days having to do things myself. 

By the end of yesterday, I had hired a babysitter/good friend to watch Evie and went to buy medical face masks so Erick could at least help out a bit more now that his fever was gone.   I truly felt bad for him, because he couldn't kiss Evie's chubby cheeks and it was killing him.  The love of a dad.

For a minute, I wallowed in self pity that my first Mother's Day was not what I had envisioned.  

And then I realized that I wouldn't trade my temporary misery for anything else, because Evie is the best gift I could ask for. For my Mother's Day, I got to spend the day with my baby daughter, and she rewarded me with some giggles at my funny faces.  Her laughter is like gold to me!  

This morning, as I drove to one of our countless appointments at Boston Childrens, I just thanked God that I get to be Evie's mommy.  She was worth the long wait!  

At the bottom of this post is a Youtube video of "Beautiful Things" by Gungor.  I already liked the song, but found out from a friend with her own extraordinary boy that the lead singers of Gungor wrote this song when their child was born with Down Syndrome.  I used to play this song during my drive to work, thinking about how our lives would be so different with or without Down Syndrome, but that I knew Evie would be our beautiful gift. Now the song is even more special to me.

Evie showing off flowers for me from my thoughtful sister-in-law
A postscript: I would like to thank my husband, who does everything he can to be a partner in raising Evie, and who makes sure I have a moment to myself each day so I don't go crazy.  He got me a new phone and bought me a takeout steak dinner despite being out of it on Dayquil. 


  1. I love your posts, Amy. Can't wait to meet little Evie!

  2. Pray for you! Hope you would get a little more rest.

  3. This is a bit belated, but happy first Mother's Day to you. It wasn't what you dreamed of, but neither are having kids in GENERAL! And those first laughs are worth more than any pretty dress or perfect Mother's Day aren't they! You are one amazing and beautiful mama, with one amazing and beautiful baby (hubby does a great job too!). You are a hero in my book.


Post a Comment

Popular posts from this blog

Repost with a giveaway! From Straitjacket to Starfish: A Shark Tank win

Update:   Hi all, I am doing my first giveaway! If you read my blog post the other day on the miraculous Zipadee Zip, then you know how this thing has changed our lives as parents.  The makers of Zipadee Zip liked my review so much, that they offered to help me do a giveaway. All you have to do is 1) "Like" their Zipadee Zip Facebook page and 2) leave a comment about why you could use a free Zipadee Zip on this post! The contest begins Wednesday, May 27 at 12:00 AM and ends on Sunday, May 31 at 12:00 AM.  Good luck! a Rafflecopter giveaway  ------------------------------------------------------------ Original post: There was a point in time when I was just proud I could swaddle teeny tiny Evie with a hospital blanket. Then she came home and started busting out of the blankets, and woke herself up all the time. Her arms flailed and her legs kicked while she was sleeping, which of course woke her up. But then she got bigger and craftier, and I needed to fin

Jumping and Friendship Crafts with Evie

This Youtube video was at first made to showcase Evie's first real jump on a trampoline. Then it became a video with a message about making new friends, because I was just so impressed with how Qole gave Evie the space she needed to feel comfortable enough to say yes to getting on the trampoline.   And then as we were making a paper craft about friendship, and we were pulling out different pieces of color, I was struck with how it became a teaching moment for my daughter that people of all colors can hold hands and can look out for each other. May it be so. The world needs it now more than ever. 

Going public: Down Syndrome Awareness Day and what it means to us.

Starting this blog was a big deal for me. It's hard to throw out there in conversation that my baby girl has Down Syndrome, because that extra chromosome makes people view her differently. But because it is Down Syndrome Awareness Day on 3/21, I'm going public. Do you know why it's on the 21st?  Because of the 21st chromosome having an extra copy! So far, Evie has just been our beautiful baby girl who is learning to smile and reach for things. But as she grows older, I want our extended circle of friends to know, so that they can treat her as a typical little girl who may be a little delayed in her development, but will want to be included just like other kids.  I want the other kids to play with her and to learn that little girls with disabilities like to have fun too. Our story about our diagnosis is here .   Now that we've met Evie and know what we're dealing with, it's not SO scary as it was before.  Still overwhelming sometimes , but I wouldn'