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Today's post brought to you by the letter R...and S...andV

After five days in the hospital for RSV, we are home!   I never knew what RSV was until we were in the NICU.  RSV stands for respiratory syncytial virus. Most kids get it by age 2 and get better in 1-2 weeks. But kids who are preemies or have respiratory issues are at higher risk of getting bronchiolitis or pneumonia. Evie got bronchiolitis. Hence the fast breathing that alarmed me and brought me to the ER.  Our other little friends with Down Syndrome had RSV, and I guess we joined the club. 

I'm pretty skittish about being around people with colds now. I used to not care, but now if I get sick, there's a high chance Evie will get it, and it is so sad when she is sick. I also do NOT want to spend more nights sleeping in the hospital, as fun as it is to see our friends there! 

So please don't be offended, friends, if you lean towards Evie and then I ask you if you'd like to use my handy Purell hanging from my purse. I'm protecting my young. :)

Here is Evie after her bath to cleanse her from all the hospital germs.  Clean and happy! 



Evie lost a pound during her hospital stay, which was a bummer since we were hoping to decrease the amount of food we have to give by g-tube.  But the good news is that if we can get her back on an upward trend in weight, then we will have a new Nutrition plan to help her to eat more by mouth. Here is Evie at a GI follow up and clapping for her eating log where we record how many bites she eats each meal! 


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