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Evie is 2!

A little overdue, but Evie is 2! I don't know where the time went. I have to say that I much prefer Year 2 over Year 1. Year 1 was filled with anxiety about her health, oxygen tanks and feeding tubes, and going to numerous doctors' appointments. Year 2 was more about watching her grow in so many ways, and getting to enjoy her more.

I swore I wasn't going to do anything for her birthday after last year's wedding birthday party, but Uno's did a great fundraiser that weekend for the Massachusetts Down Syndrome Congress, and donated 20% of the bill to the MDSC.  So we invited our friends to eat there with us!

As she turns 2, here are some FAQ's about Evie that you may have:

  •  Is Evie walking yet? No. But we just picked up Evie's ankle-foot orthotics, which we hope to ease her into as soon as I can get her bigger shoes to accommodate them. New purple sparkly hippo shoes are on their way! Hopefully with a more stable ankle support, she will feel more comfortable about walking.

  • Is Evie saying words these days? Dada is still her #1 word, but now she is saying Baba and sometimes says Mama when she's upset. Gee, thanks, Evie.  She tends to say Lalalala when she's annoyed, and GAH when she means no. She has no problems about letting us know how she feels. Her laughter is pure joy to my heart.
    Who's hiding under there?

  • How is Evie's eating? Better. We are working on getting her more fats and proteins in her food so that we can continue to cut back her g-tube feeds. It is a tricky balance of gaining weight and continuing her growth and development, while weaning her off the tube.

  •  What is Evie's favorite book these days? She loves the Karen Katz Lift-the-flap book "How Does Baby Feel." She also gravitates towards Eric Carle's "The Very Hungry Caterpillar." She tends to listen to the book until halfway and then close the book and move on to another book. I like to think she is going to be a speed reader.

  • Does Evie have any Christmas traditions? A big nap after lunch. She still cares more about the wrapping than the gift itself. The Christmas Eve service became nap time for her as well.  Evie's nap and mealtimes somehow caused gift opening to be at 6 pm this year!  I'm thankful for adult siblings who can wait to open gifts!

  •  How many articles of clothing does she have that have penguins on them? 10 and counting. It's winter time and Mommy is constantly seeing penguin clothing and is having trouble resisting them.  H&M and Target have awesome penguin clothing right now!
We are looking forward to 2017 with Evie!  We are hoping that this is the year that she will learn to walk and we can say goodbye to the feeding tube!  Wishing our friends and readers a wonderful start to the New Year!


  1. love her updates!!! keep them coming! so glad year 2 was easier! you and E are rockstar parents!

  2. Thank you, Ilene! You are always so encouraging!


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