Among the many things that the pandemic shut down was Evie's first sleep study. She's a little behind in getting this done, as most kids with Down Syndrome have it done sooner, but since she didn't snore or have other symptoms, we weren't in a rush. When we finally had it scheduled, it was canceled early in the pandemic. Now the new date is finally around the corner, and it caught us off guard!
One of the resources I have come to really appreciate is the Social Stories site on the Boston Children's Hospital website. If your child is due for a procedure at the hospital, it's worth checking out.
My main goal this time is for Evie to have an inkling of understanding about why the heck they are trying to put stickers on her head and wrapping her up like a mummy. I usually aim high, but I have very low expectations for her cooperation level! I will just be pleased if we don't have to do this again!
For this sleep study story, I took the provided PDF file, used Adobe to convert to Microsoft Word, and then edited in her name and pictures of her to superimpose over the 10 year old boy in the story. Putting in her picture is definitely worthwhile, as she is a sucker for anything that has her picture on it!
A big thank you to the parents who have gone before us. So far, we've learned that my husband isn't getting any sleep that night, as he has graciously agreed to volunteer as tribute. Best dad ever! Stay tuned for the rundown on Evie's adventures in the sleep lab!
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