Somehow the visit to Equipment Clinic snuck up on me. It was a 3-month wait after being referred by the Down Syndrome Clinic, and then I found myself trucking downtown with Evie and her entourage for the appointment. The nanny and I imagined that the Boston Children's Hospital Equipment Clinic would be a huge room filed with all types of equipment for kids with disabilities, and that Evie would try different equipment. We were sort of close--a long line of wheelchairs along the hallway led up to a smaller exam room. The physical therapist (PT) and a representative from National Seating and Mobility were with us. The PT reviewed Evie's needs, which were a pediatric walker and possibly adaptive stroller. Rewind for a second. Evie is doing great with her ankle-foot orthotics, but she is still wanting to lean forward while she stands. Her Early Intervention team thought that as she transitions to preschool in a few months (!), it is a good time to ask for a gait train
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).