It's been 5 days since Evie's day surgery at Boston Children's, and I am writing about our experiences in case it helps someone else. The surgery: Baby teeth extractions and 3rd strabismus (eye turn) surgery. Evie's teeth were coming in all crooked and she literally had 3 rows of front teeth in some places. With strabismus surgery, it was always possible that Evie would need a touch up. So here we were, getting ready for her to go in as a 10 year old for surgery, when her last one was 5 years ago. Things I was worried about: preparing Evie for the procedure, recovery from anesthesia, and nausea Preparation Social Story: I took the social stories on the Boston Children's Hospital page and found the day surgery story. I then converted it to an editable Word document so that I could customize it for Evie. I waited until 3 days before the surgery to introduce the story so she could have enough time to process it, but not too much time to be ...
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).