It was a glorious 5 minutes of untethered freedom. Last night we walked around the kitchen with no cords or tubes attached to Evie, because I had to change out her oxygen cannula for a fresh one. I got to walk ALL around the kitchen as far as I wanted to with Evie in my arms, and there was nothing to trip on or pull us back. My surge of happiness while we walked into the kitchen surprised me, even though we've done this before. Erick and I have developed cat-like reflexes so we don't trip over the ever-present 25-foot oxygen tube. I like to think that I am quick like a ninja now. I knew my brief stint playing Fruit Ninja would come in useful (I used my feet too)! Evie didn't show much acknowledgement that she had no stickers on her face or little plastic prongs sticking up her nostrils, but she seemed content. Keeping it real as she poses for her 4-month photo In less than 2 months, we will probably have real freedom from the oxygen, but she may ne
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).