Sometimes when I'm hooking up Evie's g-tube in the food court in the mall, I look around to see if anyone is watching. I still brace myself when someone shows interest in what we're doing. I have no idea what they will say or conclude, but I do my best to explain why she has a feeding tube in a practical way. The Feeding Tube Association just released a brochure that tells our friends and family how to be helpful to us. I love their list of what is helpful and what is not so much, that I had to post it. Here is the full brochure: http:// www.feedingtubeawareness.or g/ Family_and_Friend_Guide_to_ Tube_Feeding.pdf Evie's mommy's commentary in italics below ( my original g-tube entry is here ): What is Helpful. Listening. Parents who are just starting on this process have a lot on their mind. They have concerns and they may not know all the answers yet. When Evie just got her g-tube, we were having trouble figuring things out post-NICU stay, and answer...
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).