Evie's Latest Recommendations for Making Life Easier for Evie (and Mommy)

Evie just got her second pair of SMO's!  (If you missed our post about her first pair, and don't know what SMO's are, click here.)  I feel a little mom guilt because I didn't keep up with her appointments at the orthotics clinic.  I felt like I could tell when she outgrew the SMO's.  I was wrong.  By the time we went back, she had outgrown her SMO's by about 2 cm, which is a lot if your feet are the size of a large avocado.  If you're interested, this time she got a princess print.

Rocking the walker around the neighborhood 

Evie's own solution for taking a break from walking


Now that summer is here, Evie's foot needs are a little different. SMO's are really hot and make your feet sweaty.  I've found that we need mesh socks and ventilated shoes.  Here are Evie's tried and true recs for the summer SMO fashion statement:





Can't forget the Hello Kitty shoes.  Thankfully, she hasn't decided to make it a project to open the Velcro and take her shoes off.


 Evie has also outgrown her current iPad cover. Outgrown = overused and bent out of shape.  I found a new kind that comes with a screen protector on top.  That is a win for a kid who drools as she watches Wheels on the Bus for the 3857th time. Evie's current favorite songs are Wheels on the Bus, Elmo's Brush Your Teeth song (very edgy for Elmo), and Laurie Berkner's Silly Brushing Song.




Evie's favorite books this week are more interactive, and very helpful when eating meals.
She actually started to make more sounds verbally when I read "I Can Roar" to her, because she loves animal sounds and seeing mommy's face through the hole in the book that you wear on your head.

 She also loves this Hat book.  I have added to my mommy repertoire the ability to act like a pirate, a Viking, a chef, a fireman, and a construction worker.



I've been actively looking for sensory activities for Evie to help her development.  I ended up with water beads and foam beads.  I got a clear bucket and she's been playing hesitantly with them.  She apparently inherited her daddy's dislike of getting her hands dirty.




I went for the foam stickers too, to help with fine motor skills.
The foam stickers were definitely a hit for an afternoon activity.



Those are Evie's latest recommendations!  If you use our links, the Amazon Associates program will add money to Evie's book fund!

Hope you are all having a wonderful summer.  Stay tuned for what happens for Evie in the summer during summer school.  We will be finding out shortly!

Beauty isn't just at a fashion show

I was pretty excited to go to the Down Syndrome Clinic's Fashion Show today.  We had a local radio host, 3 photographers who donated their time, a buffet lunch, and a rockin' fashion show lined up.  Kids and adults of all ages were there--grandparents, aunts and uncles, parents, friends, and the rock stars themselves, the kids with that extra copy of the 21st chromosome.  

There was a toddler with a royal blue ball gown and a tiny silver tiara in her hair.  There was a chubby-cheeked infant boy sporting a preppy navy dress shirt and shorts and a summery tan fedora.  A 12 year old boy made us ooh and aah with his skills with a hula hoop and a spin ball.  He wasn't that good--but his happy spirit and attempts to make the audience laugh made him spectacular. A group of elementary-aged girls in a dance troupe performed for us, and their team member with Down Syndrome, while she didn't keep up exactly, showed that she was fully included and appreciated.  The teens who modeled either hammed it up or shyly came on stage with their siblings, who urged them to take their moment to shine.  The final fashion show participant, a popular 22 year old guy with a tie, showed off his Ric Flair moves and got wild applause. 

A toddler announced as a girl who likes guacamole....who doesn't? (Identity protected by the very bleached out photos I took)


I got a little teary each time a child came on stage.  No matter who was on stage, the crowd went wild.  Every kid who took the stage deserved to know that they were beautiful.  Some have already been called names, and others have hit that moment when they realize that they are different from others.  As parents, we tell them that they are beautiful, but in one word, someone can strip that away.  My daughter Evie is only 3, and thinks she's the center of the universe, but one day, someone may tell her that she looks funny or actually use the "r" word.  We need more events like this to show children of all abilities and backgrounds that they are valued and worthy of love and appreciation.  The more that we spread awareness that children with disabilities are beautiful in every sense of the word, the less ignorance there will be in this world.  

A crowd of beautiful kids. 


Frank Lloyd Wright said " If you foolishly ignore beauty, you will soon find yourself without it."  If we ignore the beauty in those with disabilities, we miss out on the beauty that they can offer and thus miss out on how they can enrich our own lives.  I'd like to issue a challenge to anyone reading this--find someone with a disability this week and tell them that they are beautiful, or point out something wonderful about them.  I promise you that the reward will be immeasurable for them and for you. 

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