I bet the title got your attention. When Evie was still in the NICU, we were offered the option of Sildenafil, otherwise known as Viagra, for helping Evie's pulmonary hypertension. Basically the tiny dose of Sildenafil would help to dilate the vessels to help the oxygen saturation in her blood. (I think.) Apparently insurance companies get confused when Viagra is prescribed for a baby girl. The nurse said that sometimes they call and ask if the diagnosis was supposed to be erectile dysfunction. Yes, ma'am, because a baby girl would have erectile dysfunction. The other option was oxygen, not because she can't breathe, but because it helps her oxygen saturation levels (i.e. amt of oxygen in her blood) get closer to 100%. It was tempting to choose Viagra because then we could take pictures without an oxygen cannula in the way. But Viagra is still a medication, while oxygen is something more benign. God knows that Evie is already on enough medications. We were
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).