Skip to main content

First Trip to the Mall!

Evie went to the mall for the first time a week ago! She slept through lunch at The Cheesecake Factory and a tour of all baby clothing stores at Cambridgeside Mall.  I woke her up on a bench in front of Sears to feed her a bottle and then set up her G-tube. This was actually a big deal for us, because I was testing out G-tubing on the go. 

I rigged a lunch cooler so that I could tie a G-tube bag inside of it and set the feeding pump in the front pocket. 

 It worked ok, but the logistics of putting the G-tube on, priming it on a bench, and then getting her in the carrier without tangling the oxygen tubes and the G-tube was still pretty hard.  I'm waiting for sleep deprivation to make me forget something vital like clamping the tube and having formula from her stomach spray everywhere! 

Good to be out in society!

Labels:

Comments

  1. EyefriendMarch 26, 2015 at 9:51 PM

    I love this photo of you two beautiful girls! I live near cambridge side galleria. If you are in the area again, please let me know. Victoria and I would love to see you and meet baby Evie!

    ReplyDelete

Post a Comment

Popular posts from this blog

Repost with a giveaway! From Straitjacket to Starfish: A Shark Tank win

Update:   Hi all, I am doing my first giveaway! If you read my blog post the other day on the miraculous Zipadee Zip, then you know how this thing has changed our lives as parents.  The makers of Zipadee Zip liked my review so much, that they offered to help me do a giveaway. All you have to do is 1) "Like" their Zipadee Zip Facebook page and 2) leave a comment about why you could use a free Zipadee Zip on this post! The contest begins Wednesday, May 27 at 12:00 AM and ends on Sunday, May 31 at 12:00 AM.  Good luck! a Rafflecopter giveaway  ------------------------------------------------------------ Original post: There was a point in time when I was just proud I could swaddle teeny tiny Evie with a hospital blanket. Then she came home and started busting out of the blankets, and woke herself up all the time. Her arms flailed and her legs kicked while she was sleeping, which of course woke her up. But then she got bigger and craftier, and I needed to fin
34 comments
Read more

Going public: Down Syndrome Awareness Day and what it means to us.

Starting this blog was a big deal for me. It's hard to throw out there in conversation that my baby girl has Down Syndrome, because that extra chromosome makes people view her differently. But because it is Down Syndrome Awareness Day on 3/21, I'm going public. Do you know why it's on the 21st?  Because of the 21st chromosome having an extra copy! So far, Evie has just been our beautiful baby girl who is learning to smile and reach for things. But as she grows older, I want our extended circle of friends to know, so that they can treat her as a typical little girl who may be a little delayed in her development, but will want to be included just like other kids.  I want the other kids to play with her and to learn that little girls with disabilities like to have fun too. Our story about our diagnosis is here .   Now that we've met Evie and know what we're dealing with, it's not SO scary as it was before.  Still overwhelming sometimes , but I wouldn'
28 comments
Read more

Jumping and Friendship Crafts with Evie

This Youtube video was at first made to showcase Evie's first real jump on a trampoline. Then it became a video with a message about making new friends, because I was just so impressed with how Qole gave Evie the space she needed to feel comfortable enough to say yes to getting on the trampoline.   And then as we were making a paper craft about friendship, and we were pulling out different pieces of color, I was struck with how it became a teaching moment for my daughter that people of all colors can hold hands and can look out for each other. May it be so. The world needs it now more than ever. 
1 comment
Read more