Happy Laryngomalacia Day! According to Facebook, it is Laryngomalacia Day, and I must spread the word. When Evie was a little NICU baby, the nurses and doctors started mentioning something called "stridor" when talking about her breathing. I didn't really know what that meant, but I knew that her breathing was noisy and kinda sounded like that of a Canada goose. We thought it was actually rather cute. Throwback to the days in the NICU Laryngomalacia is the clinical term for a floppy voicebox. The tissue over the top of the voicebox is floppy in children with laryngomalacia, and the folds of this tissue come together and vibrate when the baby inhales. This makes a harsh or high-pitched sound. It can also cause problems with eating and swallowing, as the floppy tissue can interfere with liquids going the right way. Evie had a bronchoscope down her throat during her g-tube surgery so they could confirm that there were no other issues further dow...
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).