One year ago, we were already in the hospital with Evie, who was prepped for her big day. It's not every day that your child goes in for open heart surgery. I felt terrified, excited, anxious, and confident all at the same time. Terrified because of all the risks of heart surgery. Excited because finally my baby wouldn't be too tired from the 3 holes in her heart to do anything. Anxious because Evie's life was in someone else's hands. Confident because Evie was already a miracle from God, and He had already shown us that she had things to do in her lifetime! When Evie was picked up by a nurse and the nurse walked away from us to the OR, she looked over her shoulder at us and my arms felt empty. The hours of waiting went in segments of phone calls of updates from the nurse. We wandered around the hospital, just waiting for the next call. The hardest segment was after the call that Evie was on the bypass machine, which essentially meant that her heart ...
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).