Evie the Extraordinary and Her Mommy: The Journey As We Go

Part of having a 1 year old seems to be that I'm bound to be asked if Evie is walking yet.  I cringe inside, because she hasn't even been crawling.  I knew that she would likely not be crawling by 12 months, and I know that every child progresses at their own pace, but it still hurts a little to say no.  It really helps me when people ask "What is Evie working on," instead of "Is she walking yet?"  I want to hug them when they ask the question this way, because I've just been spared having to give an explanation. Usually they are people who have no idea about Evie's medical history, but it still smarts a bit.  At this point, every baby progresses at their own pace, and I know that some kids don't even walk until they are 2 without having Trisomy 21.  So it's still "acceptable" that she's not walking yet. However, Evie is doing pretty awesome.  She is at about a 9 month old's motor skills, and she gets better by the week...

I just realized that today we hit 2 good milestones! Firstly, we said goodbye to one of Evie's many medications. This is her 6 month anniversary since her heart surgery for three holes in her heart!  She has had to take half a baby aspirin as a preventative measure for six months after the surgery. Today we stopped on doctor's orders, and good riddance!  Cutting pills in half and then getting them to dissolve in a small syringe of water to put in her g-tube is not something Daddy will miss.  The other milestone is that we don't have to see the Ear, Nose and Throat specialist anymore!  Since she doesn't wheeze with stridorous sounds from laryngomalacia, and also since she hasn't had any ear infections, the doctor doesn't need to see Evie anymore unless she gets an ear infection.  Kids with Down Syndrome are more vulnerable to ear infections due to their ear anatomy, but Evie has been lucky so far. Thank you, God!  One less doctor to visit!  ...