Last night, I woke up every 2 hours because I was afraid Evie was spitting up because she kept making gagging noises in her sleep ( lots of phlegm still). At 1:30 am I told the nurse that her oxygen levels were drifting. The nurse said, "that's because she's off oxygen." I said ok, and went back to sleep, knowing that they were seeing how she was doing in room air. In the morning, the nurse announced we were taking off her oxygen tube. I did a double take and had to ask her to repeat herself. She said that Evie had been breathing well on her own all night. This is not only amazing in its own right, but also because the surgeon (let's just call him Dr. Awesome) had thought we might even have to still go home on oxygen. Today, Dr. Awesome was surprised too! She still needs to improve her oxygen saturation levels even more, but it's looking good! This is Evie the moment she got the oxygen tube off her face. The tape holding it on was huge, so I don't bla...
While sharing our journey with Down Syndrome, we want to help other parents with our experiences, as well as spread awareness about what it means to have Down Syndrome (spoiler: it means great things!).