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Showing posts from November, 2015

Happy Thanksgiving from Evie!

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A very happy Thanksgiving from Evie! 
We are so thankful for this little turkey. She has brought us so much joy!  We are also thankful for the friends and family who have surrounded us with love during this very adventurous year!

G-tube adventures in public

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What do you do when your daughter's g-tube button pops out of her stomach while you're in the middle of a busy restaurant?



In the middle of S&S Restaurant, I pulled Evie out of her stroller and didn't realize the G-tube was threaded through the stroller strap.  I looked down at what was pulling on her, and saw the whole G-tube button sitting there in her stroller. and the hole to her stomach peeking out at me. 

Someone without experience with G-tubes might expect that blood and guts would come pouring out, but the only thing that would pour out would be milk or whatever food she had in there.

I got scared to death of this happening when we first left the hospital. They just told us we had to go to the ER if her button popped out of her stomach, and that we had 2 hours to get there before the hole closed and she had to have surgery again to get another one on there. 
Thank GOD that The GI nurse at Boston Childrens taught me how to change it out. On a doll, and then on Ev…