Special Pah-king in Boston

One of the nicest things the NICU attending did for us was to send us home with a form filled out for a temporary handicapped parking placard. I guess when you have an oxygen tank in the car, this makes you eligible.

http://www.sfweekly.com/binary/37ca/largest222.jpg

I didn't have time to go to the DMV, so I sent the form in the mail. That was my first mistake.

More than a month later, after countless appointments where a handicapped parking space with the baby and the oxygen tank might have been nice, I still hadn't received my handicapped placard in the mail. I called and they said I could come in person to get it done, since they were backlogged.

So today I went to the DMV Medical Affairs Office in Quincy. I waited an hour for a lady to come and hand me an envelope and tell me that I was approved, but I needed to take my baby to the DMV to have her photo taken. So I guess my second mistake was not asking if I had to bring my baby. Because she might drive the car, and she should have her photo taken too.

http://ec.l.thumbs.canstockphoto.com/canstock3668682.jpg

Ok, I am being facetious. I see how people could abuse their privileges, but it really seems like such a hassle. I asked if I could bring in a picture, and apparently that could be allowed if I write a letter explaining why I couldn't bring Evie in person. Having already had a taste of the DMV bureaucracy, I think I will just avoid all possible problems the 2nd time around, and just take her back to Quincy to have her picture taken. Maybe we can hold her oxygen tank up so it can be in the picture too. Because really it's like my 2nd child when we're out and about!


Oxygen tanks--the big one lasts about 2-3 days, and the little one lasts 2-3 hours.

Comments

Repost with a giveaway! From Straitjacket to Starfish: A Shark Tank win

Update: Hi all, I am doing my first giveaway! If you read my blog post the other day on the miraculous Zipadee Zip, then you know how this thing has changed our lives as parents. The makers of Zipadee Zip liked my review so much, that they offered to help me do a giveaway. All you have to do is 1) "Like" their Zipadee Zip Facebook page and 2) leave a comment about why you could use a free Zipadee Zip on this post! The contest begins Wednesday, May 27 at 12:00 AM and ends on Sunday, May 31 at 12:00 AM. Good luck! a Rafflecopter giveaway ------------------------------------------------------------ Original post: There was a point in time when I was just proud I could swaddle teeny tiny Evie with a hospital blanket. Then she came home and started busting out of the blankets, and woke herself up all the time. Her arms flailed and her legs kicked while she was sleeping, which of course woke her up. But then she got bigger and craftier, and I needed to fin

It's Official! The Polka-Dotted Penguin book has launched!

It's official! My new children's book, "The Polka-Dotted Penguin" has launched today! How fitting that my labor of love launches on Labor Day. The writing of the book and putting all the parts together took about a year. It was definitely a pandemic-worthy project. I wrote this book because I wanted more books available for sharing with Evie's class for World Down Syndrome Day on 3-21 and for Down Syndrome Awareness Month in October. I'm happy to release my new book just in time for October! My hope is that this book will be used as a tool to start conversations with children about how to treat others who may look or act differently than they do. It's all about inclusion and celebrating differences. This book is perfect for ages 4-9, or any ages who love penguins, or really anyone who loves Evie! Here's how to order: Barnes and Noble (Hardcover): https://www.barnesandnoble.com/.../the-polka.../1140115530 Amazon (Hardcover, Paperback, Kindle) :

Things I never thought about with food

We got the go-ahead from our GI doc to cut down the amount of formula by g-tube to try to make Evie a little hungrier. There is a whole world out there about different philosophies of weaning kids off g-tubes, and I won't go into it here, but it's truly making my head spin. I am just going to give this plan a chance (of reducing 20%*) and give Evie a few weeks to figure out that food is even more fun than she thought. We expect she will lose a few ounces here and there, and our goal is to use some food strategies to keep her from losing too much weight while she expands her food horizons. The most important lesson for the summer is: FOOD IS FUN, EVIE! So you need your kid to gain weight. She doesn't even eat food with too much texture yet. She can eat purees and yogurt, and that's about it. How do you expand her palette and avoid food aversions at the same time? I haven't come across a comprehensive list of food tips, so I'm going to write down what

Evie the Extraordinary and Her Mommy: The Journey As We Go

Search This Blog