I now specialize in specialists

Since the end of January, Evie and I (and both grandmas) have seen the following specialists:

GI
Nutrition
Cardiology
Audiology
Endocrinology
Feeding and Swallowing Clinic
ENT
Early Intervention
Pediatrician
Oxygen Training
G-Tube Training

Just an excuse to put up a pic of the cast from ER...ah, those were the days.

While seeing so many doctors is exhausting, I also feel blessed that we live in a city dense with talented providers who are at the top of their game, and who are working in facilities with high standards.  

It's pretty tiring to go to an appointment in downtown Boston.  I have to give myself 3 hours to wake up, get ready, and drive us to the hospital.  After the #snowpocalypse, the traffic was even worse.  But we still have it good--I met one family who drove 3 hours from Tewksbury to Boston.  That is not supposed to take 3 hours.

Each time we go out, we have an oxygen tank and a cooler with her G-tube kit, and of course the regular baby gear that we need.  Evie has a knack for peeing on me right when I pick her up to put her on the scale at the doctor's office.  Now I have spare clothes for her and a spare shirt for me.  That is a tip that someone shared with me, and it is definitely helpful.  Of course, since I put spare clothes in the diaper bag, she has not peed on me since.

Sometimes I am envious of parents who only have to take their kids to the doctors for their regular pediatrician visits.  But I am mostly thankful that we have good health insurance and the ability to get care for Evie when she needs it, and that there are people making sure she gets healthy and stays healthy.