When the lights go out...twice

We survived the snowpocalypse of 2014-2015 with no power outages. And yet, this past Thursday, we lost power twice for no reason. Usually this is no big deal (unless you are 8 months pregnant and have to climb 7 flights of stairs in the dark to get home), but it took on new meaning with a new baby, an oxygen tank, and acid reflux. Evie and I were watching a movie (Labor Day--don't bother) while Erick was at the gym, when all of a sudden the power went out. I had always kind of chuckled to myself that we had a 60 lb oxygen tank sitting in our living room as backup, but now I understand why we have it.


Meet Big Bertha the Oxygen Tank--Ollie is scared of her

As the lights went out, the oxygen condenser started beeping to let us know that Evie wasn't getting oxygen. Then the G-tube coincidentally started beeping to let me know that her feed was done. Then Evie started crying because she had gas. Basically in the span of 30 minutes, we lost power, the oxygen went out, I scrambled to hook up backup oxygen in the dark, she threw up on me, then the power came back on, and then Erick came home from the gym and missed all the excitement. :)

Then I hooked her back up to the regular oxygen condenser, and then 2 hours later, the power went out again. Evie entertained us during the blackout with cute baby faces and cooing by candelight. What a night!

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It's Official! The Polka-Dotted Penguin book has launched!

It's official! My new children's book, "The Polka-Dotted Penguin" has launched today! How fitting that my labor of love launches on Labor Day. The writing of the book and putting all the parts together took about a year. It was definitely a pandemic-worthy project. I wrote this book because I wanted more books available for sharing with Evie's class for World Down Syndrome Day on 3-21 and for Down Syndrome Awareness Month in October. I'm happy to release my new book just in time for October! My hope is that this book will be used as a tool to start conversations with children about how to treat others who may look or act differently than they do. It's all about inclusion and celebrating differences. This book is perfect for ages 4-9, or any ages who love penguins, or really anyone who loves Evie! Here's how to order: Barnes and Noble (Hardcover): https://www.barnesandnoble.com/.../the-polka.../1140115530 Amazon (Hardcover, Paperback, Kindle) :

Repost with a giveaway! From Straitjacket to Starfish: A Shark Tank win

Update: Hi all, I am doing my first giveaway! If you read my blog post the other day on the miraculous Zipadee Zip, then you know how this thing has changed our lives as parents. The makers of Zipadee Zip liked my review so much, that they offered to help me do a giveaway. All you have to do is 1) "Like" their Zipadee Zip Facebook page and 2) leave a comment about why you could use a free Zipadee Zip on this post! The contest begins Wednesday, May 27 at 12:00 AM and ends on Sunday, May 31 at 12:00 AM. Good luck! a Rafflecopter giveaway ------------------------------------------------------------ Original post: There was a point in time when I was just proud I could swaddle teeny tiny Evie with a hospital blanket. Then she came home and started busting out of the blankets, and woke herself up all the time. Her arms flailed and her legs kicked while she was sleeping, which of course woke her up. But then she got bigger and craftier, and I needed to fin

Going public: Down Syndrome Awareness Day and what it means to us.

Starting this blog was a big deal for me. It's hard to throw out there in conversation that my baby girl has Down Syndrome, because that extra chromosome makes people view her differently. But because it is Down Syndrome Awareness Day on 3/21, I'm going public. Do you know why it's on the 21st? Because of the 21st chromosome having an extra copy! So far, Evie has just been our beautiful baby girl who is learning to smile and reach for things. But as she grows older, I want our extended circle of friends to know, so that they can treat her as a typical little girl who may be a little delayed in her development, but will want to be included just like other kids. I want the other kids to play with her and to learn that little girls with disabilities like to have fun too. Our story about our diagnosis is here . Now that we've met Evie and know what we're dealing with, it's not SO scary as it was before. Still overwhelming sometimes , but I wouldn'

Evie the Extraordinary and Her Mommy: The Journey As We Go

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