I waited and prayed for a baby for so long, and here you are. I've had a whole year with you! You aren't even really a baby anymore. You are a squirmy, curious toddler with an infectious laugh and a smile that could light up the room.
You are also a fighter. You lived through 6 weeks in the NICU and charmed everyone around you, and you made open heart surgery look like a piece of cake. The smiles that you gave after heart surgery made me realize that 1) you were not feeling well enough to smile very much before, and 2) that you have the cutest dimples. The experience confirmed to me how much God has been providing for us on this journey of being your parents.
You (mostly) patiently wait for us to change your feeding tube dressing or let some gas out of your tummy. You put up with Mommy's playing dress up with you and telling you to pose for the camera. You even give a cheeze-y smile for me when I ask. You charm everyone at your many hospital appointments and wave enthusiastically at everyone. You have a little bit of separation anxiety right now like any other kid, and I secretly love being the one who you want to see. You give the best hugs when I've been away at work and you finally get to see Mommy. Your big eyes that searchingly study me when you're supposed to be sleeping--how can I be annoyed with you? You are just too cute.
The song below was my theme song last year for my life. It was a reminder of the gift of a baby girl I was going to meet soon, and I had no idea how your extra copy of a chromosome would affect our lives. The song was written by another mommy and daddy of a baby with an extra copy of a chromosome. You are beautiful inside and out and I wouldn't change anything about you.