Skip to main content

Why I feel sad sometimes, and why squeaking hippos make me feel better

I wouldn't trade Evie for the world. But the other day, I felt a sudden sadness that this world expects certain things and she is not on its timeline.  We celebrate the same victories with her...just a lot later. And I see the gap of time growing bigger from her peers.  I recognize that we are now entering the time I dreaded a bit--the time where she's not a teeny tiny baby whose job is only to look cute.

Now she's expected to walk and talk (insert where someone tells me their child didn't walk until age 2, which I do appreciate).   At 20 months (Happy 20 months, Evie!), Evie is able to stand with assistance or lean on something for longer and longer periods of time. But I don't know if she will walk this year or next year or even by age 3.

Here's a nifty chart that shows the typical range for certain skills for a typical child vs a child with DS.

(from "Down Syndrome Awareness Month."

Meanwhile, we just keep chipping away at those skills.

Evie working on good seated posture while using an eye patch to address how one eye sees better than the other
I got her cute hippo sneakers with squeakers not only to give her feet more support, but also to make myself feel better when I heard she will provably need ankle or shin orthotics.  There's nothing like looking at a sparkly purple hippo face when you are sad that your child has to have leg braces of some sort (more on this when I actually figure out what these will be like). 
They squeak too!  Click on the picture to see them on Amazon.
In these days when I'm feeling a little sad for my baby, I remember the following things:

1) Evie's going to the same destination. She's just taking the scenic route. 

2) I know people who have kids with DS who are older and they are doing great.  They have jobs, they have friends, and they have people who love them dearly.

3) I have friends who have kids with DS who are Evie's age and they can commiserate with me at any time. Such an awesome support!

4)  I get to cuddle Evie a lot longer than other parents whose kids are busy walking around and don't care to snuggle as much anymore!

Love this diagram:

And if you are the mushy type and want to cry along with I think about Evie going to kindergarten someday, this is an awesome post written by Noah's Dad about his son's first day in kindergarten this year. I will have to go back and read this when she's going to school.

Happy Back to School, for those of you moms who are going through it in these next few weeks!


  1. Compare Evie with Evie is the best way to be her mommy and grand mother! And the tis also the best for Evie!


Post a Comment

Popular posts from this blog

Repost with a giveaway! From Straitjacket to Starfish: A Shark Tank win

Update:   Hi all, I am doing my first giveaway! If you read my blog post the other day on the miraculous Zipadee Zip, then you know how this thing has changed our lives as parents.  The makers of Zipadee Zip liked my review so much, that they offered to help me do a giveaway. All you have to do is 1) "Like" their Zipadee Zip Facebook page and 2) leave a comment about why you could use a free Zipadee Zip on this post! The contest begins Wednesday, May 27 at 12:00 AM and ends on Sunday, May 31 at 12:00 AM.  Good luck! a Rafflecopter giveaway  ------------------------------------------------------------ Original post: There was a point in time when I was just proud I could swaddle teeny tiny Evie with a hospital blanket. Then she came home and started busting out of the blankets, and woke herself up all the time. Her arms flailed and her legs kicked while she was sleeping, which of course woke her up. But then she got bigger and craftier, and I needed to fin

Jumping and Friendship Crafts with Evie

This Youtube video was at first made to showcase Evie's first real jump on a trampoline. Then it became a video with a message about making new friends, because I was just so impressed with how Qole gave Evie the space she needed to feel comfortable enough to say yes to getting on the trampoline.   And then as we were making a paper craft about friendship, and we were pulling out different pieces of color, I was struck with how it became a teaching moment for my daughter that people of all colors can hold hands and can look out for each other. May it be so. The world needs it now more than ever. 

Going public: Down Syndrome Awareness Day and what it means to us.

Starting this blog was a big deal for me. It's hard to throw out there in conversation that my baby girl has Down Syndrome, because that extra chromosome makes people view her differently. But because it is Down Syndrome Awareness Day on 3/21, I'm going public. Do you know why it's on the 21st?  Because of the 21st chromosome having an extra copy! So far, Evie has just been our beautiful baby girl who is learning to smile and reach for things. But as she grows older, I want our extended circle of friends to know, so that they can treat her as a typical little girl who may be a little delayed in her development, but will want to be included just like other kids.  I want the other kids to play with her and to learn that little girls with disabilities like to have fun too. Our story about our diagnosis is here .   Now that we've met Evie and know what we're dealing with, it's not SO scary as it was before.  Still overwhelming sometimes , but I wouldn'