Saturday, February 28, 2015

A G-Tubie's Schedule

Evie has mild laryngomalasia and aspirates when she's tired.  But she can eat about 20 ml of formula before she fatigues.  She gets sloppy when she gets tired.



Here's a sample G-tube schedule for us, although it keeps evolving as she grows:

9:00 am           Feed by bottle
10:00 am         G-tube 85 ml at 60 ml/hr
12:30-1:30 pm Feed on demand by bottle
2:00 pm            G-tube 85 ml at 60 ml/hr
5:00-6:00 pm    Feed on demand by bottle
7:00 pm           G-tube 85 ml at 60 ml/hr
9:30-10:30 pm Feed on demand by bottle
12 am               G-tube 70 ml at 60 ml/hr
2 am-8 am       Continuous feed of 150 ml at 25 ml/hr

If she drinks more by bottle, then we reduce the amount by G-tube.  The continuous feed, when it was suggested to us, was a life-changer. We now get about 5 hours of straight sleep at night if she doesn't wake up screaming because of gas.  More about gas later.

I hope this helps someone, because I couldn't find a schedule with volumes or rates anywhere, and it would have helped me a lot to see an example written out, rather than just being told to feed her every few hours. 

http://cdn2.bigcommerce.com/n-pktq5q/ttvlf/product_images/uploaded_images/infinity-orange-feeding-pump.jpg 
The picture shows her using an Avent bottle because that's what I started with, but once we found out she was aspirating and we had to use thickened formula, we switched to a standard Dr. brown bottle with a Level 3 nipple. 

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