Skip to main content

Evie writes from the hospital bed

Hi Mommy,
This was a funny day. Last night instead of putting me to bed, you stayed up with me and played with me, and kept asking me to eat. I didn't want to eat. I wanted to play.  Then you hooked up my feeding tube early and we got in some extra cuddles. I started giggling because this was more fun than going to bed.  Sometime soon after that, I think you forgot to hook up my feeding tube like you usually do overnight. My tummy was hungry! I had to make smacking noises all night to tell you that you forgot to feed me on a continuous feed like you usually do! 

You woke me up when it was still dark! Was it because you wanted to play with me, Mommy? I thought you did, so I smiled really hard at you and said a big hello!  

We got in the car and Daddy and I both fell asleep. Daddy usually has as much trouble staying awake as I do!  

We got to the hospital and got in a little room with a big bed for me. They stuck big stickers with wires on me, and then I heard silly beeping machines again, like when I was in the other hospital. I like kicking off the tape on my big toe.   A nice lady came to pick me up. You and Daddy said goodbye to me.  That's all I remember about that...

And then...Mommy, I woke up and they had a tube stuck down my throat! I hate when they do that! I screamed and screamed when they took it out of me. They said sorry to me but I don't think they were sorry. Apparently while I was sleeping, they stuck a tube up my leg and looked at my heart and lungs. My leg hurt!! 

Then you came back for me, Mommy, but I wanted you to know I wasn't pleased.  So I kept crying. Finally you all decided to feed me. Geez--took you long enough.  

The nurse ladies kept touching my foot and rubbing a probe on it. That tickled. They wouldn't stop. I guess they couldn't feel my heartbeat in the leg they put the wire in.  So they gave me medicine and I stayed with mommy and daddy in that room for 6 more hours. Then they decided they liked us so much, they would invite us to stay overnight. 

Now I am sleeping in my hospital bed and mommy is in a long chair next to me. They are going to feel my foot a lot tonight, they said. I guess that's ok, as long as they don't forget to feed me again! 
-------
Hello again, I am feeling a lot more like myself this morning! I wanted to sit up in bed today instead of lying down. I have a lot of wires on me and Mommy says I look like Robocop. I don't know who that is.  I guess he wears pink like me. 


Mommy and Daddy both got chair massages today and came back relaxed. Daddy also got another massage in the Family Center.  He must really like massages!  Mommy said she really needed one because the pull out chair she slept in was uncomfortable. But she had an egg crate mattress, which helped a lot. Best $13 she spent at Target!

Today I had to stay in my bed with all the wires.  Daddy and Mommy played with me, but it was not the same.  There's this room across the hallway that the nurses take me into, and I don't like that room. They take my blood there.  There's no need for that, Mommy.  Why do they do that?

Daddy said he is staying with me tonight in my room.  Mommy, I hope you get some sleep.  See you tomorrow morning and we can play some more!

Love,
Evie
Postscript: Evie's surgery is this morning (Wednesday).  Thanks for your prayers for everything to go smoothly and that Evie would recover quickly!

Comments

  1. Sending prayers and good vibes to Evie and her family today! It never ceases to amaze me how strong, beautiful (and extraordinary!) our children are--we are truly blessed.

    Evie, I met with a colleague of your mom's today (all the way up north in Newfoundland)--you have many angels looking out to you from all corners.

    Good luck sweet girl! Rock this world!

    ReplyDelete
    Replies
    1. Thank you so much! I think you must be talking about a classmate of mine! That is so cool! Thank you for your prayers and good wishes!

      Delete
  2. Evie. Your buddy Noelle arrived today in Boston to cheer you on. She landed first at 6pm on Tue in your father home town of Detroit where she was granted US citizenship. Then she touchdown in Logan at 1130 to say Go Evie Go!!!

    ReplyDelete

Post a Comment

Popular posts from this blog

Repost with a giveaway! From Straitjacket to Starfish: A Shark Tank win

Update:   Hi all, I am doing my first giveaway! If you read my blog post the other day on the miraculous Zipadee Zip, then you know how this thing has changed our lives as parents.  The makers of Zipadee Zip liked my review so much, that they offered to help me do a giveaway. All you have to do is 1) "Like" their Zipadee Zip Facebook page and 2) leave a comment about why you could use a free Zipadee Zip on this post! The contest begins Wednesday, May 27 at 12:00 AM and ends on Sunday, May 31 at 12:00 AM.  Good luck! a Rafflecopter giveaway  ------------------------------------------------------------ Original post: There was a point in time when I was just proud I could swaddle teeny tiny Evie with a hospital blanket. Then she came home and started busting out of the blankets, and woke herself up all the time. Her arms flailed and her legs kicked while she was sleeping, which of course woke her up. But then she got bigger and craftier, and I needed to fin

Going public: Down Syndrome Awareness Day and what it means to us.

Starting this blog was a big deal for me. It's hard to throw out there in conversation that my baby girl has Down Syndrome, because that extra chromosome makes people view her differently. But because it is Down Syndrome Awareness Day on 3/21, I'm going public. Do you know why it's on the 21st?  Because of the 21st chromosome having an extra copy! So far, Evie has just been our beautiful baby girl who is learning to smile and reach for things. But as she grows older, I want our extended circle of friends to know, so that they can treat her as a typical little girl who may be a little delayed in her development, but will want to be included just like other kids.  I want the other kids to play with her and to learn that little girls with disabilities like to have fun too. Our story about our diagnosis is here .   Now that we've met Evie and know what we're dealing with, it's not SO scary as it was before.  Still overwhelming sometimes , but I wouldn'

Why is Sophie the Giraffe so awesome?!

My husband and I had a discussion about why Sophie the Giraffe is so beloved and effective, yet so simple.  This rubber giraffe is $18-25, and Erick was just astounded that it is so expensive.  I told him that EVERYONE has this giraffe, and he asked why it was so special.  This post is dedicated to my dear husband. A rare photo without her oxygen cannula Evie LOVES Sophie.  So the question is why? 1. Who wouldn't love a toy with its own Wikipedia entry and Facebook page?  I knew Sophie was French, but had no idea she was so old.   2.  Why not a penguin, a duck, or an elephant?  It's the neck.  A giraffe has the perfectly sized neck for an infant to grab and practice motor skills.  Then why not an ostrich?  The neck is too skinny, and no ears for baby to suck on! (You can tell I am sleep deprived, because I am thinking of the ideal animal for a rubber toy.) 3. No batteries required.  Since Evie was born, our battery inventory has grown significantly. Someone need