Her blood pressure is a bit elevated too.
The funny thing is, Evie won't let the sedative meds hold her down. She has been moving around quite a bit. The nurses are calling her "feisty" and "rowdy." It's good to be feisty, but not when you might pull out the tubes that are helping you! She opens her eyes sometimes to look at me. She's not in pain though. I keep telling her I'm sorry she has a breathing tube. The nurses assure me she is ok. But they don't want her to be so awake that she's moving around.
At lunch today, I met another mom and dad with a 9 month old girl here in the cardiac ICU. Little Ellie has Down Syndrome, just had heart surgery and has a g tube too! It was nice to meet a family who are walking a similar journey. There is a certain automatic kinship when you meet someone who understands any of those things, not to mention all 3 of those things!
It's looking like tomorrow she will be woken up and they will remove the breathing tube. Tonight we get to have one more night of good sleep at home and then we will be on active duty watching over her as she gets transferred to the step down unit. We would really like to see her blood pressure go down on its own.
Sleep well, little Evie!